This was the last journal entry posted by my friend Fred about her little guy who was born with some major heart issues. Please pray extra hard for all of them....
Frankie is keeping the docs thinking extra hard around this place. He was re-intubated yesterday after the night he had on Thursday...the daytime proceeded with increasing troubles. He is now resting and looking a million times better.
Frankie's second heart surgery is scheduled for this Tuesday (day after labor day.) At this point it is clear Frankie did not have a virus but, his heart is just not functioning the way it should and that is affecting his overall health. We know they will be fixing his mitro valve leak - which seems to be getting worst on each echo they perform. It is still undecided if they will repair his valve with a stitch or completely replacing the heart valve. There is also the possibility that Frankie's pulmonary band will be removed and the VSD hole closed up. The pro of that would be to have both the valve and hole taken care of in one surgery. The con is his right side of the heart is helping out the left side thought the hole - closing it up will make the heart have to work in a new (harder) way for the first time just after open heart surgery. All of the docs that are considering their options (along with us - mom & dad) will be keeping Frankie's best intrest in mind; short term and long term. Decisions will be made based on what is in his best interest...and keep him alive. Some decisions can be made now and others will have to be placed in the hands of his surgeon, to be made upon actually going in and seeing how the heart is working first hand. Will and I have complete understanding and trust in Frankie's surgeon that he will do what is best for Frankie!!
This surgery is MUCH sooner than they wanted it to be. It was originally scheduled when Frankie was to be 1-2 years old. But, considering where he has been in the last two weeks it has become apparent they can't wait that long - or even another month for that matter. Keep him in your thoughts and prayers...
1 comment:
Oh my goodness! I am saying major prayers. Please pass along to Fred, Will, and Frankie. They are amazing people with phenomenal courage and strength. I will say a prayer as well that they and the medical team are guided to the best decisions on the upcoming surgery.
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